Nose feeding tube swapped for a tummy version

Lilian went into hospital to have her nose feeding tube swapped for a tummy version. Originally only a 24 hour visit. Lilian became extremely ill and spent  few days on intensive care.

Wednesday:

Went into hospital and got ready for surgery in the morning. Lilian was a good girl and it was only mummy (who stayed overnight) that caused trouble. She thought the emergency cord in the toilet was the light switch.

Thursday: Lilian had surgery in the morning. She was moved to Intensive care afterwards and given morphine to settle.

Friday: Thursday evening / early Friday morning Lilian got a very high heart rate (218) and fever (39.4). They did loads of tests to find out the cause. Lilian impressed the doctors by showing how quick she was. All the doctors where gather around her bed and when they all looked she decided to pull out her nose tube in front of them. I am sure she had a little grin on her face when she did it

Saturday. Lilian was better and moved back to the ward.


Sunday: Lilian was giving the nurses a hard time, she kept pulling her canola out. Reason she got her hand wrapped.

Monday: We finally got her home
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
Lilian dressed up for her home coming party.. All cool in her sock trainers and her sticky toy on her head.

Tummy Time

Lilian rolling onto her tummy (with the help of mummy). Video recorded the day before her g tube surgery.

Sticky Fingers

It was Lilian's Grandpas (my Dad) 60th birthday party on Sunday. We all whisked him off to a restaurant in London called Sticky Fingers that is owned by the Rolling Stones bass player Bill Wyman. He and Grandma then went to see a show in the West End and stayed overnight in a very swanky hotel.

Lilian was a very good girl and enjoyed herself very much. She must be used to her parents record collection by now as the 60s rock and roll in the restaurant didn't phase her at all. We only had one costume change during the day too which was good going as I think Lilian is going through her Madonna phase and wants to wear at least 5 outfits a day at the moment.

Birthday boy, his Mummy (Granny) and Lilian.

Lilian thought Sticky Fingers was literal and proceeded to get very sticky fingers using the left overs of my chocolate brownie pudding.

Uncle Stuart gets grumpy when he's not the centre of attention.

Photo Session at the Hospital

We had an appointment with the dermatologist team at Kings, they needed to take a look at some small lumps on Lilian's scalp. They decided to take a sample when the g-tube surgery is performed and we will then find out what it is. Since no one has come across it before we where asked to go and see the medical photographer and get some photos taken. Mummy couldn't help sneaking in a few personal photos and we ending up getting professional photos of mummy and Grandma taken. Here'a couple of pics of Grandma.

Story Time

Lilian's danish cousins Anton and Tobias has given her some brilliant new baby touch books. Lilian loves them and she is getting really good at turning the pages and grabbing onto anything she can get hold off.

big mouth strikes again

Lilian has started to speak! Well, make a funny noise that sounds like Daddy at least. She responds to you like she's trying to convey her thoughts on how tonight's episode of Eastenders was both a telling tale of gritty life in the East of London interposed with some witty banter and good humour.

Here's a video we captured with Mette's fancy pants new mobile phone. 

the big lunch...sort of

Lilian went to visit Anabelle today; of course us parents went along too. We were meant to go to a "Big Lunch" on a nearby street. But as none of us have been to a Big Lunch before we got a bit lost and confused and hurried past opting to go to the pub instead (no bad choice). This is Lilian's first time in a pub and even though Mummy made her wear a massive hat she enjoyed herself thoroughly as did Daddy who got to meet Anabelle's Mum Ida and Dad Daniel for the first time.

Apparently Lilian is going to show Anabelle and Ida around the aquarium at the Horniman museum in the near future. She is an expert after all.

daddy hearts cycling

A couple of weekends ago I cycled from London to Brighton in aid of the British Heart Foundation and managed to raise £661.28. It was a great day even though I got a bit sun burned whilst waiting for Stuart (my big brother) to turn up. Lilian was born with a heart condition that she's still fighting to keep under control so I thought it was apt to combine helping Lilian and my love of odd looking shorts.

it's all about the smiles

Lilian is getting better at the smiling thing. She loves to smile at about 5am when she gets up. i think she's laughing at mummy and daddy as they probably look a bit worse for wear at that time in the morning. she enjoys herself though. i think daddy teaching Lilian to stick her tongue out has stuck though as if she doesn't fancy a smile she poke her tongue out instead. Lilian is also a great talker and can often be found chatting away in her own imitable way.

hello world!

hello everyone. my name is lilian and i rule my world from my arne jacobsen rip off green chair. this is my first blog and i'm six months old already. must get better at the technology thing. anyway must go because i have to eat/sleep/poo/cry now. more soon.