As part of the Costello Conference we were very privileged to be invited to the House of Lords to celebrate the launch of the RASopathy Network. It's been discovered that a collection of syndromes, such as Costello (what Lilian has) cardio-facio-cutaneous and Noonans all share the same genetic pathway. By grouping the syndromes together in research and pooling resources more progress can be made into fully understanding them.
On Friday morning everyone got dressed up in "smart casual", tried to eat breakfast without getting eggs down their fronts and then jumped on board a couple of coaches. The traffic into London was okay and we went via Knightsbridge which the non residents of London enjoyed. On arrival at the the Black Rod Gate entrance to Westminster we were ushered through security at a slower pace than the airport - ultra secure! We also found out that Westminster was closed to the public for the day and we were all special guests.
|Our fancy pants invites to the House of Lords.|
|Waiting...still waiting....raining...got there|
We all met in Westminster Hall (built 1097) and waited for our tour guides. As Lilian was in her pram and we were special-enough guests we were taken around the back route to get up the stairs at the back of the Hall. We got to see the real inner workings of Parliament and what terrible taste they have in carpet and wallpaper.
|Apparently a good tennis court for the King.|
|Just behind here to the right.|
|The picture on the left is of Lilian and her Australia friend Nicola plus her mum and dad.|
|The two tents.|
It was strange to be this side of the fence. Lilian regularly attends the hospital (St Thomas') that's opposite Westminster. Mette had to stay a couple of nights there herself and had a room that overlooked the scene we were attending.
|St Thomas' in the background|